Siobhan and Dan Pritchard are remarkable parents of remarkable James, amazing ultra runners and tireless supporters of RDS and research to develop treatments to assist memory and learning in persons with Down syndrome, as well as address the increased likelihood of Alzheimer’s disease.
Tomorrow, through Sunday!, Dan is running the Leadville Trail 100, yes, 100 miles, and over elevations ranging from 9,200 to near 13,100 feet. He must complete this run in 30 hours, in order to “finish”.
Here is the story of Dan and Siobhan’s 321 Mile Challenge, as they compete in ultra races and marathons this year totaling 321 miles, raising awareness and $$ for Ds cognitive research:
Beginning tomorrow morning, through Sunday morning, follow Dan’s progress on Twitter: @321_Miles and #321MileChallenge
This RDS Runners FB discussion group is sweeping the country! A group of parents, siblings, grandparents, aunts, uncles, cousins, teachers, therapists and friends running and fundraising for loved ones with Down syndrome. 5k, 10k, marathon, ultra and beyond…it doesn’t matter…all want the same thing for their kids…love, acceptance and research dollars! If you have a passion for staying in shape and a passion for someone with Down syndrome, please join us.
Nine year old Kaydence is competing in a triathlon in Colorado and fundraising for RDS: http://goo.gl/0azKep
On August 24th Kaydence is racing in the Fort Collins Club Kids Triathlon to raise awareness and funding for Down syndrome research. After becoming friends with her buddy, James, Kaydence realized the importance of helping provide opportunities for increased memory and learning for James and others with Ds.
You are amazing! What a great thing you are doing to help your friend James and so many others.Good luck with this next triathlon. Your parents must be very proud of you!
Dr. Bob Schoen”
Research Down Syndrome thanks the 24-Hour Relay Run for Research organizers Lisa Arnoa and Matt MacDougall, and all the runners who participated in this RDS fundraiser held in Clark, NJ on Friday and Saturday, June 13-14… read more about the run on the RDS website – http://www.researchds.org/inaugural-24-hour-relay-run-for-research/.
Nate Jolls(pictured) is our second RDS Runner competing in an Ironman event (Jonathan Keller competed in the Wisconsin Ironman 2013.) An Ironman is a 2.2 mile swim, a 112 mile bike race and a marathon, right, a 26.2 mile run!
Nate was introduced to Research Down Syndrome by RDS Runner and fellow Air Force pilot, Charlie Schoen. Together, these AF Captains stationed at Fairchild AFB in Spokane had been training for the Coeur d’ Alene Ironman being held in Idaho this Sunday. They planned to fundraise for RDS.
In May, Charlie was unexpectedly deployed to Qatar and Afghanistan, so he was not available to compete. Nevertheless, Captain Jolls, a 2010 USAF Academy grad and UH-1 Huey pilot from Gowanda, NY, continued preparing for the Ironman without his training partner and, most generously, he continued his commitment to raise money for the important studies that Research Down Syndrome is supporting, research that will lead to the development of drug treatments to improve memory and learning in persons with Down syndrome.
Please consider a donation in recognition of the service of Captains Schoen and Jolls, and in gratitude for Captain Jolls’ remarkable effort and generosity in Idaho this Sunday, supporting the Down syndrome community.
You can make your donation here: https://www.crowdrise.com/RDSRunnersIronman.
Happy World Down Syndrome Day! Follow the Research Down Syndrome Facebook page today to see posts and pictures of hundreds of WDSD Virtual Run/Walkers across the country.
A special shout out to Megan Wagner who created her own fundraising page, set a goal of $2100 and blew that goal away. Thank you Megan, and thanks to all of your donors.